About Ibd
How Patient Stories Change Perspectives and Influence Lawmakers
- Autor: Vários
- Narrador: Vários
- Editor: Podcast
- Duración: 0:52:23
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Sinopsis
Every person living with inflammatory bowel disease (IBD) can help change public policy by sharing their story and participating in advocacy events, such as visiting legislators in Washington, D.C. Amber talks to Kelly E. Dwyer, who teaches us how to prepare an elevator speech and gives us practical tips for Hill Day logistics, working within teams, staying emotionally resilient, and following up with staffers. Advocacy is for everyone, and persistence and collaboration can lead to real policy changes to benefit the IBD and chronic illness communities. By the end of the episode, you'll have the real resources you can use to do this work as a patient advocate both locally and nationally. This episode is sponsored by Connecting to Cure. Transcript and more information: https://bit.ly/AIBD186 Chapters: 00:05 Introduction and Guest Background 01:23 The Role and Nature of Patient Advocacy 02:37 The Long Game of Advocacy: Successes and Challenges 04:37 Advocacy vs. Activism and Personal Motivation 0