About Ibd

Are you ready to tell your story? Your legislators in Washington D.C., in your state, and your home town want to hear from you about how IBD has affected your life and the legislation you care about. Brooke Abbott of The Crazy Creole Mommy Chronicles and Amber tell you how to get started in health activism and how to make your voice heard in our government! 6:00: What’s an IBD Elevator Speech? Hear Brooke’s and then use the create your own. 7:15: Find out what happens when you meet with the staff in your representatives’ office. 12:27: What should you know—and do—before you meet with someone at your representative’s office? 12:53: What you do say when you call your representative’s office to set up a meeting? 15:34: Do this if your representative will not meet with you. 22:07: What to write on a postcard you send to your representative. 28:50: Do our representatives pay attention to Twitter hashtags? 29:48: How https://www.govtrack.us/ and https://www.congress.gov/ can help you advocate! 35:30: Brooke always

If I asked you what about your IBD you were grateful for, what would you say? This is exactly what I asked IBD Advocates, and their answers are as complex, rich, and varied as they are. As you listen to their responses, you will undoubtedly find yourself nodding in agreement with some ideas and seeing your life from a different perspective with others. I hope this episode is as fulfilling for you to listen to as it was for me to produce. 4:45: Hear why Alison Rothbaum of Empowering Patients wouldn't give back these 2 things. 6:25: Brooke Abbott of The Crazy Creole Mommy Chronicles explains why IBD turned her life upside down in a positive way. 8:55: Christy Stone of Crohnie Bologna gives you the four-letter word that has defined her journey with IBD. 11:17: Megan Johnson of The Front Butt YouTuber explains why her IBD goes hand-in-hand with her accomplishments. 13:00: Ryan Stevens of Crohn’s Guy tells us what IBD has helped him cut out of his life. 14:00: What’s Your Trust Setting? http://aboutibd.com/2016/04

What's it like to watch your partner's ulcerative colitis become life-threatening and not be able to do anything about it? My husband, Mike, tells my story from his perspective, including how we met, what it was like to watch my health degrade, and all about our fairy tale wedding. Featured Guest: Michael Tresca Twitter: https://twitter.com/worldofwelstar Facebook: https://www.facebook.com/worldofwelstar/ Patreon: https://www.patreon.com/talien Want to become a Lady or Lord of Glencoe, like Amber? Buy your plot of land here: https://www.highlandtitles.com No, there are no utensils at Medieval Times. But you can get married there, like we did, or have your 15th anniversary party there, which we also did: http://www.medievaltimes.com In loving memory of Anastasia, also known as Mary Queen of Scots and the Quiet Scottish Tailor. Intro Music: Sunny - Bensound.com - www.bensound.com/royalty-free-music Outro Music: Tenderness - Bensound.com - www.bensound.com/royalty-free-music  

On this episode of About IBD, I talk with Michael Osso of Crohn's & Colitis Foundation and learn how important clinical trials are to patients with Crohn's disease and ulcerative colitis, including how we can do better to ensure trials are completed. This podcast will answer many of your questions about clinical trials, plus we discuss the brand new resource the Foundation has launching later this month! Featured Guest: Michael Osso, President and CEO Crohn's & Colitis Foundation http://www.crohnscolitisfoundation.org/about/staff/ Website: http://www.crohnscolitisfoundation.org/ Facebook: https://www.facebook.com/ccfafb/ Twitter: https://twitter.com/CrohnsColitisFn Need Help With Your IBD? Call Crohn's & Colitis Foundation's Help Line at 888-694-8872 or email info@crohnscolitisfoundation.org Music: A New Beginning - Bensound.com - www.bensound.com/royalty-free-music Acoustic Breeze - Bensound.com - www.bensound.com/royalty-free-music  

When you fly, do you board early? Once you get on the plane, what's the first thing you do? What's the second? Veteran traveler Jaime Weinstein, who lives with Crohn's disease, answers these questions and more based on her personal experiences when flying the friendly skies. Featured Guest: Jaime Weinstein Twitter: @JaimeEditor Instagram: @slightlyjaided Web Site: http://prettyrottenguts.tumblr.com/ Facebook Groups: https://www.facebook.com/groups/ibdjourney/ https://www.facebook.com/SupportIBD/ Music: Buddy - Bensound.com - www.bensound.com/royalty-free-music Memories - Bensound.com - www.bensound.com/royalty-free-music  

I talk with Brooke Abbott of The Crazy Creole Mommy Chronicles about what it's like to be a parent with a chronic illness and how that's affected our relationship with our children. We also try to figure out how to clone ourselves and I'm so tired that I get the name of a well-known celebrity wrong -- several times. Featured Guest: Brooke Abbott Twitter: @CrzyCreoleMommy Facebook: https://www.facebook.com/crazycreolemommy/ Web site: https://crazycreolemommy.com/ Women of Distinction: https://crazycreolemommy.com/the-giant-pat-on-the-back/ Additional Audio Engineering by Mac Cooney http://cooneystudio.com/ Music: Clear Day - Bensound.com - www.bensound.com/royalty-free-music

What's it like to be a competitive swimmer and one day develop Crohn's disease? Well, you don't stop swimming! Hear Ryan Stevens, Crohn's Guy, talk about the work he's doing to raise awareness of IBD. Featured Guest: Ryan Stevens Twitter: @ryan_crohnsguy Facebook: https://www.facebook.com/IBDSwimmer/ Web site: www.crohnsguy.com Swimming With Courage & Crohn's: http://www.janssen.com/making-a-splash-with-patient-advocacy Finely Tuned: http://www.finelytuned.com/ Music: Moose - Bensound.com - www.bensound.com/royalty-free-music  

On this episode of the About IBD Podcast, I discuss j-pouches and bust some of the misconceptions that surround them. I also give my firsthand experience as a j-poucher who gave birth twice and let you in on what it's like for me to have a midline scar from open surgery. Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: “About IBD" ©Cooney Studio.

The second edition of the About IBD Podcast where I talk with 3 women with IBD about their experiences in telling their partners about their Crohn's disease or ulcerative colitis. Featured Guests: Jaime Weinstein www.prettyrottenguts.tumblr.com @JaimeEditor Brooke Abbott www.crazycreolemommy.com @CrzyCreoleMommy Christy Stone www.crohniebolognaibd.com @CrohnieBologna Music: Funky Element - Bensound.com - www.bensound.com/royalty-free-music

The first edition of my About IBD Podcast where I talk about this fungus fracas, how it relates to Crohn's disease and ulcerative colitis, and why I'm not too worked up about IBD research done on mice. Find Amber J Tresca of About IBD at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutIBD/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Credits: "About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/