About Ibd

Stress is a huge problem for people who live with immune-mediated conditions like Crohn's disease or ulcerative colitis. The condition causes tension in all the parts of our lives. We can't get rid of it, so we need to find ways to either minimize it or manage it. I talk to Dr. Jin Lee, neuropsychologist and CEO of IMIdeology, about managing stress while living with chronic inflammatory diseases like IBD and lupus. We discuss the impact of chronic stress on health, the challenges of fragmented care, and the benefits of a multidisciplinary, holistic approach. Dr. Lee shares practical, easy-to-implement stress management tips that you can do even when sitting at a stoplight! Plus, we tell you about the upcoming "Bridging Autoimmunity: Patient Forum" taking place on September 13th in Dobbs Ferry, NY. You'll come away from this episode understanding how integrated care, community support, and small daily habits can improve quality of life with chronic illness.   Episode transcript and more: https://bit.ly/AIBD182

A children's book leads to this conversation, which bridges the worlds of chronic illness, creativity, and connection. I talk with MB (Britt) Mooney, author of "The Mouse Who Couldn't Eat Cheese," a children's book inspired by a young woman named Alex who lived with severe Crohn's disease. MB, a science fiction and fantasy author, stepped outside his usual genre to create a story that helps kids and families understand invisible illnesses and the power of friendship. You'll hear behind-the-scenes insight on MB's creative process, the lessons learned from working with Alex's family, and the message he hopes every reader takes away—whether they live with inflammatory bowel disease or not.   Episode transcript and more information at: https://bit.ly/AIBD181   Topics in this episode include:

Episode transcript and more information at: https://bit.ly/AIBD180   Grassroots organizations are an important part of the IBD landscape, helping fill in the many gaps in our underserved community. Amber talks with Angela Clark, president and CEO of Propel a Cure, a grassroots nonprofit that funds research projects looking for the causes of Crohn's disease. They discuss the challenges of finding cures for IBD and the importance of supporting innovative, early-stage research. Angela explains their grant selection process, highlights current research they fund, and shares how the organization communicates complex science to the IBD community.   Topics in this episode include: Origins and mission of Propel a Cure, a nonprofit organization focused on Crohn's disease research. Angela Clark's personal connection to Crohn's disease and her role in Propel a Cure. The grassroots nature of Propel a Cure and its all-volunteer structure. Challenges and rewards of running a nonprofit organization dedicated to IB

Amber speaks with Hindy Klein, a member of the Orthodox Jewish community living with Crohn’s colitis. Hindy shares how she manages IBD while observing Jewish laws, discussing challenges with diet, fasting, and hospital care during Shabbat and holidays. She also talks about overcoming stigma, the importance of community support, and how her faith helps her cope. The episode highlights the need for cultural sensitivity in healthcare and the value of sharing personal stories to support others with chronic illness.   Episode transcript and more information at: https://bit.ly/AIBD179   ✨ Intersection of inflammatory bowel disease (IBD) and religious faith ✨ Personal experiences of managing Crohn's colitis within the Orthodox Jewish community ✨ Challenges related to diet, fasting, and hospital care during religious observances ✨ Cultural tendencies towards privacy regarding chronic illness in the Jewish community ✨ Importance of community support and mutual aid in times of health crises ✨ Navigating healthcare comm

Amber interviews Dr. Ali Navidi, a gastropsychologist specializing in mental health for people with gastrointestinal disorders. They discuss the importance of addressing mental health alongside conditions like IBD and IBS, highlighting the stigma surrounding these issues. Dr. Navidi explains cognitive behavioral therapy (CBT) and clinical hypnosis, emphasizing their effectiveness in managing symptoms. He also shares insights on the challenges of accessing mental health care and introduces a new therapeutic group program for IBD patients developed in collaboration with the Crohn's and Colitis Foundation, aimed at making treatment more accessible and affordable.   Episode transcript and more information at: https://bit.ly/AIBD178 Mental health challenges associated with inflammatory bowel disease (IBD) Stigma surrounding mental health in gastrointestinal disorders The connection between mental and physical health in digestive disorders Disorders of gut-brain interaction and their implications Importa

Elizabeth Coldrick, a nutritional therapist and breathwork facilitator living with IBD and a permanent ostomy shares her experiences living in Bali, the challenges and benefits of managing IBD abroad, and the importance of nutrition and breathwork for mental and physical health. She explains how breathwork can reduce stress and inflammation, offers a simple breathing exercise, and discusses her new nutrition e-book for people with ostomies. The episode highlights self-care, community, and practical strategies for living well with IBD.   Episode highlights The connection between breathwork and mental health, particularly for individuals with inflammatory bowel disease (IBD). The significance of breathwork in managing stress and promoting overall well-being. Personal experiences of living with IBD and an ostomy, including challenges faced while living abroad. The impact of lifestyle changes, such as diet and exercise, on health while living in a different country. The physiological effects of breathwo

Jonathan Stewart, co-founder of Evergreen Adventures, a nonprofit focused on connecting the chronic illness community with outdoor activities, shares his journey with type one diabetes, ulcerative colitis, and sarcoidosis. Jonathan emphasizes the importance of staying active despite health challenges, describes the need for planning outdoor adventures, and encourages everyone to find joy in nature, no matter the circumstances.   Concepts discussed on this episode: Personal experiences with chronic illnesses, including ulcerative colitis and type one diabetes. The journey of misdiagnosis and the challenges of managing chronic conditions. The emotional impact of surgical decisions, such as colectomy and living with an ileostomy. The importance of community support and advocacy for individuals with chronic illnesses. The significance of restroom access and related laws for those with inflammatory bowel disease (IBD). The role of outdoor activities in promoting physical and mental well-being for peop

In this episode, Victoria, founder of GetYourBellyOut, shares her journey with ulcerative colitis and the importance of community support for those with inflammatory bowel disease (IBD). She discusses her diagnosis experience, the challenges of navigating healthcare, and the need for better patient advocacy. Victoria highlights the organization's growth, its initiatives like the IBD Nurse Helpline leaflets, and the significance of connecting patients with healthcare providers. She emphasizes the importance of funding to expand their services and create more opportunities for support, while also reflecting on the personal connections that drive her passion for this work.   Topics covered on this episode: Personal journey with ulcerative colitis and diagnosis experience Emotional and physical challenges of living with inflammatory bowel disease (IBD) Importance of community support and connection for individuals with chronic illnesses Founding and evolution of the organization "GetYourBellyOut" Advoc

Amber and gastroenterologist Dr Neil Parikh discuss technology’s impact on IBD management. Dr Parikh emphasizes the importance of patient diaries and open communication between patients and providers. They also address concerns about data privacy, integrating holistic approaches in patient care, and the potential of wearable technology in gastroenterology.   Find Neil D. Parikh, MD at: Web: Connecticut GI LinkedIn: Neil D. Parikh, MD   Find The Gut Doctor Podcast at: RSS feed Apple Podcasts Spotify All other podcast apps   Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD   Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer  Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio.   Episode transcript and more in

People with Crohn's disease or ulcerative colitis (forms of inflammatory bowel disease, or IBD) were told for many decades that diet didn't affect the disease. Even today, some patients are still told this, even though there is now significant evidence that diet absolutely matters in IBD. Stacey Collins, MA, RDN/LDN describes how her journey with ulcerative colitis led to j-pouch surgery. Her philosophy as a registered dietician is one of “nutrition by addition" rather than by dietary restriction. Stacey also focuses on the emotional aspects of eating with IBD, including the understandable fear and anxiety around food.   Topics discussed: The role of diet in managing inflammatory bowel disease (IBD). Personal experiences with ulcerative colitis and dietary management. The misconception that diet does not impact IBD management. The philosophy of "nutrition by addition" versus dietary restrictions. The importance of individualized dietary approaches for IBD patients. The impact of food on gut health

IBD patients are innovative, resilient, and powerful. My guest, Rachel Bee, is an incredible example of all these virtues. Rachel is a remarkable 17-year-old entrepreneur who was diagnosed with Crohn's disease at just 13 years old. She turned her experiences with IBD into a mission to help others by founding Infusion Hero, a company that designs innovative hoodies specifically for young patients receiving infusions.   Infusion Hero hoodies provide comfort and feature a unique design that allows for easy access during medical treatments. Rachel shares her story of navigating the challenges of her diagnosis, balancing high school, and running a business—all while maintaining her health and staying connected with friends. Don't miss Rachel's insights on how to turn personal challenges into opportunities for growth and innovation.   Discussion points include: Personal health journeys related to inflammatory bowel disease (IBD) Experiences of living with Crohn's disease as a teenager The impact of chronic i

It's not easy to manage both a career and chronic illness like inflammatory bowel disease (IBD, Crohn's disease, or ulcerative colitis). We need tools and tips in order to keep everything moving and succeed at work while caring for ourselves. I talk with Jen Hubley Luckwaldt about how freelancing can be a valid way of meeting both goals. Jen shares her journey from traditional employment to freelancing, including how it offers her flexibility in balancing work, health, and family. We talk about the importance of setting boundaries with clients, how to identify your marketable skills, and building a supportive community. Jen emphasizes the value of an abundance mindset in freelancing and offers practical tips for finding work and managing time effectively. If you've ever wondered how you can manage to work while still making it to infusions and appointments: we have a roadmap for you.   Episode highlights: Managing a career while living with inflammatory bowel disease (IBD) Challenges of maintaining traditio

Do you find it difficult to find the time and energy to deal with mental or physical clutter? Lisa Zawrotny, a productivity coach and founder of Positively Productive Systems, helps us learn how to manage clutter, even when flaring. We discuss practical strategies for decluttering both your physical space and mental load, and how to celebrate even the smallest victories in your day-to-day life. Plus, Lisa reveals her insights on creating systems that work for you, no matter your circumstances. If you’ve ever felt weighed down by expectations or struggled to find balance, this episode is packed with valuable takeaways that can help you reclaim your time and energy.   Key points: Intersection of productivity and chronic illness Challenges faced by caregivers and individuals with chronic conditions Personal journey of caregiving and its impact on productivity coaching Importance of compassion and realistic approaches to productivity Strategies for managing stress and clutter Prioritization of tasks and setting

Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD   Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer  Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio.   Episode transcript and more information at: https://bit.ly/AIBD169  

There's a need for more research addressing social determinants of health in the inflammatory bowel disease (IBD) community. Cass Condray, an IBD researcher who also lives with an IBD, points out the lack of information and resources focused on the unique experiences of LGBTQ patients. Cass also talks about the significance of representation in research, and the impact that intersecting identities have on people's health outcomes. Plus, we talk about Cass' web site, PrideAndPoop.com, what his hopes are for the future, and what there is to do in Oklahoma.   Find Cass Condray at: Web: Pride and Poop Bluesky: @cdalecondray.bsky.social LinkedIn: Cass Condray Google Scholar: Cass Dale Condray   Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD   Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer  Instagra

Amber hands over hosting duties to Jamie Holland, a patient advocate with Crohn's disease. They discuss their personal experiences with inflammatory bowel disease (IBD). They focus on Amber's decision to have j-pouch surgery after being diagnosed with dysplasia and the effects it had on her fertility. Jamie asks Amber to share about the emotional and physical challenges of motherhood with IBD, including fatigue and guilt. They also touch on the possibility of passing IBD on to children and the importance of community and support.   Concepts discussed on this episode: Xue M, Leibovitzh H, Jingcheng S, et al. Environmental Factors Associated With Risk of Crohn's Disease Development in the Crohn's and Colitis Canada - Genetic, Environmental, Microbial Project. Clin Gastroenterol Hepatol. 2024;22(9):1889-1897.e12. doi:10.1016/j.cgh.2024.03.049. Singh N, Bernstein CN. Environmental risk factors for inflammatory bowel disease. United European Gastroenterol J. 2022;10(10):1047-1053. doi:10.1002/ueg2.12319. O

Amber is joined by her husband, Mike, who recently underwent robotic hernia surgery. In this candid conversation, they explore the entire experience—from the initial discovery of the hernia to the surgery itself and the recovery process that followed. Mike shares his insights on the challenges he faced, including unexpected pain, dietary adjustments, and the importance of having a supportive caregiver. They also discuss the nuances of patient-provider communication and how to navigate the complexities of post-surgery life. Whether you’re considering surgery or simply curious about the process, this episode offers valuable lessons and firsthand experiences that might resonate with you.   Episode transcript and more information at: https://bit.ly/AIBD166   Find Michael Tresca at World of Welstar: Twitter: @WorldofWelstar Instagram: @world_of_welstar Facebook: @worldofwelstar MeWe: http://tinyurl.com/MeWeTRPG Threads: http://tinyurl.com/threadsWOW Bluesky: https://blskyl.ink/worldofwelstar Amazon

Amber shares some of the books she read over the previous year including biographies, young adult fiction, bestsellers, and romance. Hear about Amber's reading list from 2024, which was truly a mixed bag. The good news is that it contains something for everyone. Plus: learn about how you can read or listen to books for free using your local library — maybe without even leaving your house.   Library apps mentioned in this episode: Libby Hoopla Freegal Music Books mentioned in this episode: Leave the World Behind by Rumaan Alam The Giver by Lois Lowry Warrior Girl Unearthed by Angeline Boulley The Woman in Me by Britney Spears My Sister, the Serial Killer by Oyinkan Braithwaite Yellowface by R. F. Kuang Everyone Here Is Lying by Shari Lapena The Cloisters by Katy Hays Rebel Rising by Rebel Wilson I am Not Your Perfect Mexican Daughter by Erika L. Sanchez Once There Were Wolves by Charlotte McConaghy Hello, Molly! by Molly Shannon Leslie F*cking Jones by Leslie Jones Everyt

What's the difference between ulcerative colitis and Crohn's disease? We talk about them like they're two distinct sides of a spectrum, but there are people who don't have a firm place on that continuum. Amber Tresca talks with Michael Ornelas, host of the "Fine" Dining podcast, about his journey with IBD. Michael was first diagnosed with proctitis, then Crohn's disease, and later, maybe, with ulcerative colitis. Michael shares his experiences with symptoms, treatments, and the impact IBD has on life. But it's not all serious! Michael also talks about his comedy podcast, "Fine" Dining, which encompasses the search for mediocrity in chain restaurants. Maybe an unexpected choice for a project for person with IBD, so they also discuss Michael's unique perspectives on food.   Find Michael Ornelas and the "Fine" Dining Podcast at: Web: https://www.finediningpodcast.com/ Tik Tok: @finediningpodcast Instagram: @finediningpodcast YouTube: @finediningpodcast Spotify: https://open.spotify.com/show/0YQGBigjvj

For people living with inflammatory bowel disease (IBD), the path to pursuing our dreams can look different from that of our peers. Stand-up comedian Dave Piontkowski, lives with not only ulcerative colitis, but also chronic kidney disease. He developed a one-man show called "Three Kidneys, No Colon," which describes his journey with both of these conditions. Dave talks about how and why his comedy actually improved while he was fighting for his life with kidney disease. He also tells us how his comedy is connecting the chronic illness community, but there are some audience members who find it can be too much. Find Dave Piontkowski at: YouTube: @dpcomedy Instagram (check his bio for show tickets): @davepcomedy Get tickets to 3 Kidneys No Colon in Tampa, FL on December 7 at 8:00 p.m (The Commodore, 811 E. 7th Ave. Tampa, FL 33602) Find Amber J Tresca at: AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @About